Itinerations of survival: transition of care after treatment for breast and endometrial cancers

Abstract

Cancer survivors may experience late sequelae that negatively impact their quality of life. The transition from specialized care to primary care must be well-structured and organized to ensure comprehensive care. The aim of the present study was to explore the perceptions of breast and endometrial cancer survivors regarding their transition from high-complexity care to primary care, identifying the barriers they encounter in addressing their healthcare needs. The narrative research method and the concept of itinerations were used as an analytical theoretical framework. Eleven cancer survivors treated at the Brazilian National Cancer Institute and discharged from the institution by 2023 were interviewed. Thematic analysis of the data was carried out using QDA Miner Lite software. Failures in the institutional discharge communication process led to feelings of insecurity among participants. After transitioning to primary care, difficulties in accessing health services were common, associated with: structural deficiencies, geographical barriers, low problemsolving capacity and financial constraints. Strengthening communication between primary and specialized care services is essential to ensuring the continuity of long-term care for cancer survivors.